Traveling with Pulmonary Hypertension, my oxygen & meds + Packing tips & tricks
Traveling with Pulmonary Hypertension, my oxygen & meds + Packing tips & tricks
In today’s vlog I go over my “traveling tips” - I hope you all enjoy my DIY Pulmonary Hypertension travel tips. Pack with me!
#pulmonaryhypertension #music #vlog
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Thank you so much for tuning in! I was diagnosed with severe Pulmonary Hypertension 6 years ago, after having been misdiagnosed for 5 years. When I was finally diagnosed, I was in heart failure (the right side of my heart was three times its normal size), I was told that I may not have much time left to live, that I may never leave the hospital again and that if I did, I would have to be on oxygen for the rest of my life! (Not the best news!)
I had just booked a tour and was about to release my new album when everything just broke loose. Here I am, 6 years later feeling a zillion times better. I am so incredibly grateful to be alive! It is my hope that some of the things I’ve done may be of value to YOU.
For the past 6 years, I have utilized five key elements that I believe have played a huge role in my improvement. They are Nutritional Lifestyle, Exercise, Mindset, Creative expression and Quality time with Family and friends. I believe that these key elements have not only allowed for the medication to work when I was told that it most likely wouldn’t (because my Pulmonary Hypertension was so severe- pulmonary pressures were at 180) but that they have also allowed me to drastically reduce my meds. I am currently on very low doses of medication and I really don’t experience any side effects.
I get so many emails from people asking about nutrition, exercise, how to stay positive when things get difficult…basically wanting to find out what I’m doing.
As I always say, I have no idea what could happen to me tomorrow, but I do know that today, I’m so much better than I was.
It’s my sincere hope that some of the things that have helped me may be of help to you, too.
Thanks!
Chloe Temtchine
Thanks for watching Traveling with Pulmonary Hypertension, my oxygen \u0026 meds + Packing tips \u0026 tricks
Content
0 -> and I sleep with him he won't fit but
you get the point
22.369 -> okay oh hi I'm a close attention and
these that you can't see whoa are my
33.66 -> supplies
let's get these supplies on frame shall
36.57 -> we this video has been requested by many
of you and the pulmonary hypertension
40.5 -> community you want to know what my
supplies are and I'm going to share that
45.239 -> with you today if you do not use oxygen
this video will be incredibly boring you
50.19 -> might want to flip away let's begin
number one this is my medication or I
55.86 -> should say one of my medications hi face
it Thai basil meet everyone everyone
61.26 -> today so during my trip to Hawaii I went
to Ross which is like the most amazing
66.81 -> store on earth because I discovered this
bag I now put typing so in this back
71.939 -> it's actually a cooler and it straps on
like this
78.09 -> the beautiful thing is the today so has
to stay up and in this bag which has tie
86.35 -> besos cords cables blah blah blah typing
so stand straight up
92.49 -> what is this us a pill box for those of
us who can't remember to take our
97.21 -> medication I take something called a
leaf which is a generic brand name brand
103.18 -> of tattoo fill which is a generic brand
of at circa long story short it's
108.7 -> basically viagra and I put it in here I
put my vitamins in here it's a vitamin
112.81 -> d3 8501 b12 I take magnesium all of
those go in here so I don't forget to
119.26 -> take them because I forget to take them
and it also helps me keep track of the
123.19 -> days of the week because I tend to
forget what day it is
126.76 -> I do realize I said this videos about
oxygen and I haven't yet spoken about
130.21 -> oxygen but I will we're getting them
slowly but surely then we have mini
136.78 -> Steve here is mini stay if he is the
Inogen one at g3 named after Steve
142.36 -> Martin my tank the energon 1 g3 is a
little guy pulling from the back well
148.57 -> anyway you detach the better shall we
show you what I'm actually doing
152.89 -> yes okay you detach the battery like
that that's a battery that is a double
157.06 -> battery right there on a flow of 2 this
will last you about 10 hours I'm
161.59 -> basically on 2 at rest 3 when I walk
sometimes 4 but generally 3 when I walk
167.59 -> and then I put it on 6 at home when I do
exercise this guy does not go up to 6 he
173.65 -> goes up to 5 I do not use some for
exercise treadmill exercise I used them
178.66 -> for walking around this is the body this
is my head this is the size of the image
184.3 -> in g3 not bad the batteries used to be
really really awful on these things
189.55 -> which is why I never use them but I
always used Steve Martin my tank but
193.69 -> they've gotten much better and this
video is not actually sponsored by
196.72 -> intogen how that should be
but these batteries have gotten much
199.75 -> better there
longer-lasting you flip that guy in
203.01 -> there turns on I use the backpack okay
that's the backpack goes on your back
210.06 -> obviously I use the backpack because
it's just easier although it has been
215.099 -> quite heavy on my back and when I was in
Hawaii a family and had the time of my
219.03 -> life it was a little bit too heavy so I
then discovered something amazing we
225.69 -> went with a friend of ours to Walmart
and my life literally changed we
230.79 -> discovered a stroller although it's not
insanely heavy it does get heavy after a
235.26 -> while and my back wake it's starting to
kind of cave in and I'm like my posture
239.579 -> is getting bad and did it at that so I
wanted to find a solution and we related
242.94 -> what if we just use a stroller so for
like 16 dollars we bought the cheapest
247.23 -> possible stroller
I recommend this highly if you guys are
250.319 -> traveling or not traveling just existing
stroller you can put your oxygen in
255.239 -> there you can put your medicine in there
we put all our bags on top of everything
260.43 -> so we literally walked around carrying
nothing and it's actually really easy to
263.52 -> push it's not heavy at all so that's a
beautiful thing
266.16 -> I travel with two of these each one
again last 10 hours on a flow of two
271.35 -> what you do at night is or when it's
dead you don't have to do this at night
276.56 -> you just do this one the battery's dead
is just flip this guy into charger
281.34 -> charge that and take the bit to charge
so definitely prep before you fly
285.96 -> actually I lied I think on this flight
to Hawaii I took three batteries just in
289.74 -> case because it was longer and you never
know excuse me also in the airplane it's
296.039 -> good idea to turn oxygen up
I don't cuz I'm really nervous about
298.889 -> losing my battery life so I'm like
whatever you do do not turn this oxygen
302.61 -> up keep it on - but like putting on on
three is obviously much more ideal I
306.57 -> request a what do you call it a
wheelchair right when I get to the
311.31 -> airport to get onto the plane also very
helpful if you have a lot of luggage and
314.639 -> you go right through all the lines which
is wonderful and fantastic and then at
319.32 -> the end I actually don't request a
wheelchair that's when I forced myself
322.349 -> to walk because I find
that it's very difficult I take today so
326.979 -> right when I land
but then forcing myself to walk ends up
331.029 -> actually being really helpful sometimes
they have like you plan and they're like
334.029 -> we're gonna be on this runway for like
five hours because we can't get to our
337.809 -> gate so I don't like to take today so
until they like literally turn the light
341.439 -> on and everybody stands up once that
light goes up
344.739 -> I take Taipei so I go out I don't take a
wheelchair now I put all of my stuff
351.489 -> into my stroller which we take with us
on the plane because it's small and it
355.779 -> folds and I walk all the way to my gate
to my gate no to my bags and we're good
361.779 -> to go
I keep thinking something's happening in
363.549 -> the background and it is happening it's
my my TV screen saver that I love I
367.959 -> stare at that thing all the time it's so
pretty
369.579 -> two things I want to add my sequel
Eclipse this is what I travel with I
374.139 -> used to always make sure there was an
oxygen company in nearby and I used to
377.769 -> rent a concentrator for the house and I
used to rent tanks as well but then I
381.819 -> always have to think about dude are they
gonna show up you know are they there
385.389 -> before I get there
dealing with the hotel coordinating
388.029 -> everything to the Ducks so much easier
than that is I now travel with my sequel
392.259 -> Eclipse the pack I'm in a suitcase
packed my clothes around him I keep
396.009 -> feeling like plugged into the wall so I
don't have to bring any extra batteries
398.769 -> for him and I sleep with him anyway yeah
I sleep with my sequel Eclipse
404.949 -> unfortunately the image and g3 does not
have continuous flow and that's why I do
409.179 -> not sleep with the image in g3 only
pulse so that's something to keep in
413.529 -> mind I attached a 50 foot cable to my
sequel Eclipse so that I can walk around
418.569 -> do all the things I need to do so that
I'm free here my notes I took notes
422.229 -> because I don't want to forget to tell
you guys things also a lot of you guys
424.989 -> have been asking me how I swim
truthfully how I swim is that I go down
429.279 -> to the ocean with my Inogen and a huge
garbage bag and when I get there I take
436.089 -> him off and I put him in the garbage bag
and I allow myself like 10 minutes to go
440.709 -> in the water and I just go in with no
oxygen even though I'm not supposed to
444.909 -> but I feel like the ocean is so
incredibly healing that it feels like
448.059 -> it's okay
and it's just a little harder to breathe
450.29 -> but I go calmly and I try to have a
moment and then I quickly go back when
455.12 -> I'm done
and I turn my flow up to like three or
458.3 -> four to recuperate
everybody's like when you take your
460.85 -> oxygen off what happens to you I'm like
it's okay it's not like I mean I hope
464.479 -> but it's not like I'm gonna like drop
dead right away I have some time God
470.33 -> willing I take it off very infrequently
but I do take it off like to put my
476.57 -> makeup on if I'm swimming in the ocean
because clearly you can't swim with
480.76 -> oxygen on unless you're scuba diving
which actually I should just do because
486.26 -> I'm already wearing my tank so I should
just go into scuba diving the final
491.57 -> thing I'm going to add which has been
unbelievably life-changing for me is my
495.71 -> massager so I have a massager that I
sleep with again pardon the alarm we
502.19 -> live near a fire station so they go out
for five seconds but I sleep with this
506.81 -> massager it's amazing I kind of pulled
it like in my arms in the front and when
511.13 -> I turn around I put it on my back and I
fall asleep with it on and it really
515.419 -> helps to calm me down because I can feel
my heart beating at night and of course
518.51 -> that's worrisome sometimes if my heart's
beating too fast or too hard so I put
523.01 -> the massage on it calms my brain down I
do that sometimes if I'm working and my
527.089 -> heart's like having a moment I'll just
put the massager on it's really helpful
530.42 -> so I travel with that as well I think
that's it if I forgot anything please
534.2 -> let me know in the comment section below
also let me know if there's anything
536.87 -> else I can share that could be helpful I
really do hope I covered everything I
541.97 -> probably didn't I hope this is helpful
and thanks so much for watching I always
545.99 -> love hearing from you so please feel
free to leave me any kinds of comments
549.14 -> below subscribe for more content and
click like because it really helps the
553.73 -> video and makes me happy and I
see you soon
Source: https://www.youtube.com/watch?v=jm2B2Q-6yOQ