Pulmonary Hypertension | Tara's Story

Pulmonary Hypertension | Tara's Story

Pulmonary Hypertension | Tara's Story

It’s been 10 years since Tara passed out at the top of the stairs at work—the point when she found out she had pulmonary hypertension. Pulmonary hypertension is a type of pulmonary vascular disease, typically caused by common conditions like congestive heart failure (CHF) and emphysema. It can cause high blood pressure in the lungs and damage to the heart, as well as trigger severe breathlessness.

Tara started seeing a doctor at a hospital in Newark, and they told her that her best option was to wait for a lung transplant; however, they refused to perform the surgery there because they didn’t have enough experience. Instead, she turned to Penn Medicine, which has performed more than double the amount of lung transplants than any other center in the region.

“Penn Medicine’s survival rates for pulmonary hypertension are really great,” Tara said.

She became very close with her care team, namely her pulmonologist, Dr. Kerri Smith. Instead of waiting for a transplant, Dr. Smith decided to start her on a new drug that was just coming to market. And it worked - soon Tara was completely off painkillers and oxygen. A month later, she was taken off the transplant list.

Today, Tara is doing great. She’s back to work and doing the things she loves.

Learn more about pulmonary hypertension: http://bit.ly/2ISXV7s
Connect with Kerri Akaya Smith, MD, medical director of Penn Medicine’s Pulmonary Hypertension Program: http://bit.ly/2Ix7l9l
Request an appointment: http://bit.ly/2GvRkuv

#PulmonaryHypertension #PennMedicine


Content

0.113 -> (soft music)
3.49 -> - [Tara] You do what you have to do to stay alive.
5.883 -> (car door slams) (engine revs)
8.52 -> My pump was popping outta my body every four days.
11.88 -> I was on 24 hour pain killers.
14.74 -> To make this drive down here,
16.2 -> to hopefully get transplanted,
18.16 -> was the only choice for me.
21.39 -> It was this or be dead.
27.272 -> (gentle piano music)
31.97 -> I was working full time in JCPenney's
34.03 -> as a manager of the fine jewelry department.
36.46 -> I was at the top of my game.
38.56 -> I was living life.
41.38 -> I turned 30 years old on May 10th, 2008.
45.6 -> Two days after that I climbed the two flights of stairs
49.26 -> up into the JCPenney's building
51.21 -> and I passed out at the top of the stairs.
53.71 -> I wasn't sure why I had passed out.
56.42 -> I really didn't think it could be this life changing.
60.31 -> I was sent to see a doctor in New York City.
63.04 -> The doctor walked and said,
64.257 -> "I think you have a disease called Pulmonary Hypertension."
67.962 -> (soft piano music)
74.938 -> I left the hospital at New York
77.69 -> and went to Newark.
79.54 -> It was close to home.
81.54 -> As I started to deteriorate more and more,
84.23 -> their quality of care got less and less.
87.38 -> The doctor said, "you're gonna need a transplant soon
90.307 -> "and we won't transplant you here."
93.65 -> I was on a subcutaneous pump at that point.
96.79 -> It was uncomfortable.
98 -> It was always infected.
100.3 -> It was just awful.
101.81 -> To hopefully get transplanted was the only choice for me.
107.66 -> (uplifting music)
113.04 -> - Right behind the red Hyundai.
114.63 -> - No problem.
116.84 -> They love me here. (laughs)
118.48 -> I chose Penn Medicine because Penn Medicine
121.19 -> survival rates for pulmonary hypertension are really great.
125.42 -> They worked fast, but they worked very efficiently,
128.88 -> from the time my paperwork got sent down
130.48 -> to the time I was listed for transplant
131.49 -> was two and a half weeks.
133.359 -> (uplifting music)
136.806 -> (knocking) Come in!
138.75 -> - Hey Tara, how are you?
140.08 -> - Good, how are you? - Good to see you.
141.56 -> - [Tara] Dr. Smith, I love her, she's amazing.
144.25 -> She's the best thing since sliced bread.
146.491 -> (laughing)
149.7 -> Her nurse calls me at least once a month
151.28 -> just to check in on me
152.12 -> and they email all the time
153.48 -> and she texts me, 'cause we're close like that.
157.622 -> - So, here's your heart.
159.153 -> - [Tara] Because I come from so far,
160.77 -> Dr. Smith makes sure that everything's
162.43 -> all rolled into one day.
164.16 -> - [Man] Tara.
165.14 -> - [Tara] Everything was back to back.
166.647 -> (machine groaning)
167.48 -> An hour for lunch and then back to testing.
171.82 -> - [Man] Halfway there, three minutes left.
173.522 -> - Okay.
174.355 -> Everyone just works in unison
176.12 -> and it all just flows.
180.28 -> When I went to go see Dr. Smith
182.55 -> she said, "well, there's this drug
183.383 -> "but it's not coming out yet,
184.787 -> "but maybe I can do something for you."
185.99 -> And I'm like what?
186.823 -> You're gonna pull strings?
187.72 -> Are you gonna make it rain?
189.09 -> I'm like there's nothing you can do for me.
191.15 -> So she called, she called, she called,
192.8 -> they kept turnin' her down.
194.76 -> But finally she said, "as soon as it comes to market
197.057 -> "you're gonna be the first person they put on it."
200.12 -> And I was in tears.
202.1 -> She made me feel so human again
205.46 -> and that little bit of humanity was so kind.
211.31 -> It just touched me so much.
213.65 -> - It's always good to see you.
215.103 -> Call for anything, okay. - I will.
216.81 -> She's just a great doctor
217.98 -> and I wouldn't be alive today
220.24 -> if I didn't have her as my doctor.
222.275 -> (uplifting piano music)
228.03 -> You know when it's working in you
229.27 -> 'cause you feel it.
231.87 -> I am back working again, part-time.
235.67 -> Got my oxygen during the day.
238.48 -> I can drive again which is wonderful
240.61 -> 'cause for a while there I didn't have a license
242.41 -> 'cause I was on so many pain killers.
244.54 -> It's the little things
245.373 -> that I have a new found appreciation for.
247.202 -> (soft piano music)
250.56 -> Being able just to take a walk around my block.
253.91 -> Just being able to drive up to my sister's house
256.43 -> if I wanna see the kids.
258.68 -> I feel like I'm a brand new me.
261.11 -> And thanks to Penn Medicine
262.83 -> I can live my life again.

Source: https://www.youtube.com/watch?v=bqkquNb5Z8A