Newborn Critical Congenital Heart Disease - Pulse Oximetery Testing
Newborn Critical Congenital Heart Disease - Pulse Oximetery Testing
University of Texas Health Science Center -“Taryn’s Story” Newborn Critical Congenital Heart Disease - Pulse Oximetery Testing.
Content
5.65 -> I was twenty nine years old and we found
out that we were having our first child.
10.109 -> She arrived beautiful as can be full
head of black hair
14.389 -> and were both just crying with tears of
joy
17.6 -> meeting her for the first time.
19.919 -> We brought her home
22.08 -> thinking everything was okay.
24.65 -> She gained enough weight to where she was growing out of
27.409 -> one set of... size clothes.
30.479 -> So she was healthy;
33.02 -> we thought she was healthy.
36.52 -> i went to target one day, we came home
39.64 -> and i was holding her in her room
42.68 -> and she made this sound
44.24 -> that didn't sound right to me
46.64 -> when i looked at her she felt limp in
my arms and that's when i knew
51.17 -> things aren't ok.
54.32 -> I saw labored breathing
55.81 -> and I immediately started CPR and called 911.
59.48 -> The ambulance arrived and they just grabbed her
61.89 -> and just ran to the ambulance. I
just remember the number four so let's
66.36 -> start ruling it out. Do all the
tests you can rule out seizure disorder do
70.19 -> all the tests
71.27 -> for the metabolic disorders
72.9 -> what what did i do wrong? How do I not
know that my child was so sick?
78 -> That same night around eleven o'clock
the doctor said we need to sit down and
81.81 -> talk
83.56 -> she has a heart defect. And nobody
86.76 -> talked me about screening, nobody gave me the option, nobody told me was that most
91.02 -> common defect
93.079 -> otherwise
94.84 -> i would have taken that risk to take her
home without her being tested.
99.7 -> She stopped breathing for long enough to
103.15 -> cause significant brain damage.
104.95 -> She was struggling
106.25 -> even though she was intubated and they
were breathing for her.
111.06 -> They kept running tests
113.32 -> and i just remember hearing... sitting
beside her
116.63 -> wanting to hold her
118.56 -> and hearing the machines go off.
120.45 -> Because you know
121.5 -> something was wrong, something
what was wrong to alert the machines
125.68 -> to alert the nurses and doctors.
127.53 -> and we went to that all,
130.059 -> all night long.
135.379 -> We held her when she took her last breath.
144.239 -> And I remember kissing her
147.4 -> on her jet black hair.
153.489 -> We left the hospital
157.129 -> what the car seat, and it was empty.
167.829 -> I'm a neonatologistat University of Texas
Health Science Center at San Antonio
172.519 -> I'm here to tell you about a new newborn
screen that is done on apparently
177.429 -> healthy babies. It involves at the use
of pulse oximetry. If we find out a low
183.369 -> reading on the pulse oximiter
185.549 -> then the baby is refered to get
diagnosis.
189.649 -> uh... with diagnosis we may be able to
pick up a group of conditions called
193.979 -> critical congenital heart diseases.
197.419 -> You've heard V. Kennedy's
heartbreaking story about her daughter
200.789 -> Taryn
201.47 -> who died of an unidentified total
anonymous pulmonary venus return
205.909 -> TAPBR.
207.319 -> A critical congenital heart disease that
could have been found through screening.
211.01 -> Although the information about the screening was not
available at the time of Taryn's birth.
216.339 -> Screening should be done after twenty
four hours of a newborn's life.
220.189 -> Because if this screening we recently
found and apparently healthy newborn
224.639 -> before discharge with the same
life-threatening condition.
228.309 -> Mrs. Varale's baby Abe was able to have
corrective surgery before discharge from
233.01 -> hospital and he's doing fine now.
236.179 ->
238.499 ->
240.449 ->
245.409 -> I would say to all moms out there
247.759 -> before bringing your baby home
250.069 -> after they've
251.349 -> been born for twenty four hours ask
254.559 -> the hospital ask your pediatrician
257.699 -> I want pulse ox on my baby
260.65 -> and I want you to follow the rules set by
the American Academy of Pediatrics along
265.759 -> with the American Heart Association.
Source: https://www.youtube.com/watch?v=2lM8hFHUMI4